PAH IS A SERIOUS CONDITION THAT AFFECTS THE BLOOD VESSELS THAT CARRY BLOOD FROM THE HEART TO THE LUNGS.
To understand more about PAH, first it helps to understand how the heart works.
THE FIRST SYMPTOMS ARE OFTEN NOTICED WHEN UNDERTAKING PHYSICAL ACTIVITIES, SUCH AS CLIMBING UP STAIRS, RUNNING, WALKING UPHILL, OR CARRYING BAGS.
As PAH progresses, these signs and symptoms may be experienced more often and may start to impact the patient’s ability to undertake everyday activities.
THERE ARE MANY TYPES OF PAH. OFTEN IT IS IDIOPATHIC, WHICH MEANS IT IS NOT LINKED TO ANY OTHER CONDITION. RARELY IT CAN RUN IN FAMILIES.
In some cases, PAH may be associated with other conditions, such as congenital heart disease or connective tissue disease. Some of the causes are known and some have yet to be identified. A PAH doctor can help people with PAH understand what type of PAH they have. Regardless of what type of PAH they have, the treatment options remain the same.
Functional Class is a common term used in PAH. It is a critical element of the assessment of patients with PAH and determining treatment planning.
"THERE IS NO SINGLE TEST TO DIAGNOSE PAH."
Due to its complexity, PAH is usually diagnosed at specialist centres and involves a series of tests to rule out other possible conditions, and confirm diagnosis.
IT IS IMPORTANT TO START TREATING PAH AS EARLY AS POSSIBLE.
Treating PAH as directed by a PAH doctor can help keep PAH from getting worse. While there is no cure for PAH yet, there are treatments that can help people manage their PAH.
PAH affects many aspects of daily life and it can take some time to adjust to living with the condition. It is important to know that many patients share similar experiences as they adapt to life with PAH, as uncovered by the international survey.
PAH affects many aspects of daily life and it can take some time to adjust to living with the condition. It is important to know that many carers share similar experiences as they adapt to looking after someone with PAH, as uncovered by the international survey.
Regardless of the fact that you have just learned you have PAH, or have been living with PAH for a while, you are still you. Making adjustments to your everyday life, based on how you are feeling and what you want to do, will help you stay in control of your life.
If you would like to understand more about any medical terms included in this eBook, the US patient association has created a comprehensive glossary of specific expressions you may come across as someone living with or affected by PAH.
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This book has been developed by Actelion Pharmaceuticals Ltd in order to provide an environment to deliver a better understanding on Pulmonary Arterial Hypertension (PAH) and to pool information regarding the disease, the diagnosis procedure, available treatments and the impact it could have on the life of someone diagnosed with PAH. The book is for the use by a general audience.
The information in this book is not intended as a substitute for advice/treatment by a physician, whose instructions should always be followed. Neither does the information provided constitute an alternative to advice from a doctor or a pharmacist nor should it be used on its own to produce a diagnosis or to commence or cease a particular treatment.
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